Meet the McKee Family
The McKee family is the face of this year’s Piggy Bank Appeal and they represent more than 900 families across Victoria who are supported by Very Special Kids.
Ten-year-old Emma is a very cheeky girl who loves swimming, giving cuddles and playing on the swings, but she also requires 24 hour care and assistance for all her basic needs.
Emma had her first seizure at only seven weeks of age and was later diagnosed with Lennox-Gastaut Syndrome, a rare type of uncontrolled epilepsy. Emma is non-verbal, is fed through a tube and can have up to 40 seizures on any given day.
Emma’s mum Jenny has become her full-time carer and father Rodney and 14-year-old brother Jarrod do all they can to help.
Very Special Kids helps the McKee family by providing specialised respite care for Emma at our children’s hospice, as well as emotional support and guidance for Jenny and Rodney. Jarrod also participates in our sibling program where he spends time with other teenagers experiencing similar challenges.